7 ways to actually support someone with sickle cell disease
Watching a friend, classmate or family member deal with sickle cell disease can leave people wanting to help without knowing where to start. Most of what actually helps is not complicated, but it does require understanding the condition well enough to know what someone is really dealing with day to day. Here are seven ways […]
The sickle cell realities that rarely make the headlines
A disease that shapes every day Sickle cell disease is a genetic blood disorder that affects hemoglobin, the protein inside red blood cells responsible for carrying oxygen. In people with the condition, hemoglobin forms rigid, crescent-shaped structures that cause red blood cells to become stiff, sticky, and fragile rather than the flexible, disc-shaped cells that […]
Sickle cell breakthroughs — the gene therapy advances that could change everything for patients
Sickle cell disease is a genetic blood disorder that affects approximately 100,000 Americans, with Black Americans accounting for the vast majority of those diagnosed. For most of the history of this disease, treatment options were limited primarily to managing the painful vaso-occlusive crises that define the lived experience of sickle cell, preventing complications with a […]